It’s All About Me, Revisited

Last fall, I wrote back-to-back columns that used comedian Al Franken’s trademark line – “it’s all about me” – first to describe the world of a dependent care recipient and then to remind caregivers of the need to stop and take care of themselves periodically.

I’m no longer a caregiver, but I’m heeding my own words today. I’m taking the week off from blog writing.

Last Sunday afternoon, after happily polishing off my weekly post, I was outside repotting a thriving Christmas cactus. While walking back to the house, I unceremoniously tripped and fell on the brick patio. My beautiful, new, green ceramic pot went flying and, of course, broke when it landed on the unforgiving surface. Meanwhile, I went down hard on my right knee and then found myself nose-to-nose with a rather inhospitable octagonal block.

Let’s just say, the brick won our little skirmish.

A week later, my nose is improving but my knee is not. Sitting at the computer increases the pain. So, after wrestling with my inner sense of responsibility over a self-imposed deadline, I’m taking my own advice about self-care. I’ll check in again soon with another Note From My Mother, but today I think my Momma would approve of my decision to invoke Al Franken’s declaration …

It’s all about me.

Have a wonderful day and week, everyone, and may you all win any battles you might have with gravity and hard surfaces.

1 - Mom and Me 19540001

Mom was my caregiver long before I was hers. Here we are shortly after I arrived March 28, 1954. (And get a load of that early television and that funky lamp in the background! Wish I had both of them now!)

And The Horse You Rode In On

The Wicked Witch. That’s how a Wizard of Oz personality test on Zimbio.com once pegged me.  “Vile, foul, odious and deleterious to all.”  My vocabulary is above average, but I still had to look up the last two adjectives to be sure I understood.  Hateful and toxic.  Hmmm.  OK, I know those online personality quizzes are intended for entertainment and the results are arbitrary, but let me just say this about that …

And the horse you rode in on.

Tank - 2If you’re a regular reader of my weekly essays, you know that my mother and I had a robust repertoire of catch phrases for use on almost any occasion. This one came in handy when one or both of us were annoyed about something or with someone.  To be candid, it’s only part of a rather off-color phrase.  The opening two words are not appropriate for a family column, and Mom and I rarely, if ever, used them.  It was sufficient to refer to the poor, four-hooved bystander.  Besides, contrary to the random result of one Zimbio quiz, I have always been the Pollyanna of my family.  Vulgarity is generally not my style; playing “the glad game” is.Horse Note

Nevertheless, about four months after Mom passed away, “and the horse you rode in on” came to mind pretty much on a daily basis … including those first two uncouth words. I was emerging from denial; the oh-so common stage of grief that allows you to shut out the enormity of what has happened.  Although I had watched her life slowly fade, her breathing stop, and the kindly morticians remove her body, my heart could not believe she was really gone.  I remember breaking down in tears one evening after work and crying on my husband’s shoulder, “I can’t believe I have to live the rest of my life without her!”  It was the truth.  I honestly couldn’t believe it.

Anger moved in just as soon as denial moved out.  It happened when family from the Pacific Northwest gathered at my house in Nevada to distribute her belongings.  It wasn’t enough that I had lost her.  Now I had to part with many of the things she held dear.  Teacups in our shared China cabinet, elephant figurines from her vast collection, quartz crystals, small animals carved from soapstone, Christmas decorations, framed family photos, books, movies, hats, clothes, furniture.  We were scattering her life in much the same manner we would scatter her ashes a few months later.

The only way I could get through that weekend was to convince myself that dispersing her belongings was the best way to honor her.  As a Depression-era child, she attached great value to her possessions.  Parting with anything was painful for her, which is why a broken bird feeder became yard art under the crabapple tree outside her window and several cracked water tumblers remained in the kitchen cabinet.  In a generation or two, I reasoned, very few of her belongings would have meaning to descendants who didn’t know her.  Scads of it would end up in second-hand stores with two-dollar price tags.  Wasn’t it better for her children and grandchildren to receive and enjoy mementoes that they considered priceless?  After all, as the late George Harrison said, “All there is ever is the now.”

This reasoning certainly helped … until I watched everyone drive away with loaded-down cars and trucks. Practically overnight, anger consumed me.  Zimbio was right.  I became the dreaded Wicked Witch.

Everything that anyone did or said was irritating.  At home, I was angry with my husband because our lives had not instantly changed after Mom’s death.  We had freedom but we weren’t using it.  We didn’t spontaneously stop at restaurants for dinner after work, watch movies in bed, go on outings with the family or do any of the carefree things we had imagined.  Our routine was the same; except Mom wasn’t there.  At work, I was angry with the mountains of paperwork, the confounding complexity of some procedures, the disturbing lack of documentation for others, and the perceived futility of it all.  Our department director had three, simple house rules — “No mean.  No loud.  No negative.”  I was in almost constant violation of the last one.

The reason for this irrational resentment toward every person, place or thing on the face of the Earth completely escaped me.  That is, until my brother decided to part with a memento Mom had specifically saved for him.  He had his reasons, and he also had every right to make this decision.  My intellect was aware of that.  Regardless, all of my pent-up anger erupted in his direction through every electronic method available.  Text messages and voicemail recordings that must have made his cell phone hot to the touch came pouring out of me.  A week or so after both my sister and I had sufficiently alienated him, she phoned me and quietly said, “Um, remember Elizabeth Kubler-Ross’s explanation of the five stages of grief?  Maybe you should read it again.”  The line went silent for a moment.

A simple “duh” is the best way to describe my reaction. I have worked in social services for more than 25 years; many of those years providing advice and comfort to people in crisis.  How could I have forgotten that anger during bereavement is misplaced rage?  I was not ticked off at my husband, my job or my brother as much as I was just goldarned mad that Mom had left me.  Immediately, I felt the fury dissipate and a sense of calm wash over me.  It was like taking a deep, cleansing breath.  The Wicked Witch went packing and Pollyanna came home.

In the weeks following the disagreement with my brother, apologies were extended and our respective parts in the debacle were acknowledged.  Still, the hurt cast a dark shadow over the June weekend we gathered at the Oregon Coast to scatter Mom’s ashes.  Since then, a few brief text messages, perhaps one phone call, and an occasional comment on a Facebook post have comprised the sum total of our communication.  Last weekend, that finally changed.

On Friday I hitched a ride to Oregon with my son and daughter-in-law. My son, an electrical contractor, needed to finish some work on my sister’s kitchen remodel, and I saw it as a perfect opportunity for a visit.  On Saturday my sister and I went to see our brother and his family at their small farm across the Washington state line.  He had initially responded to her text message with a litany of irrelevant excuses; the kind one dreams up as a diplomatic way to say “no.”  She replied that we were coming anyway.  It was a bold move to melt the glacier that had formed between us, and it worked.

Tank in PastureAs soon as I saw my brother, I began weeping.  To be fair, I wasn’t crying just about our estrangement.  Lack of sleep over another matter had made me particularly vulnerable.  Sometimes, though, destiny has a way of mystically weaving unrelated experiences together, and my tears triggered an immediate thaw.  My brother took me in his arms and told me everything was all right.  Then he said, “I know what will make you feel better.  It always makes me feel better when I’m sad.”  At his behest, I changed into his wife’s work boots and sweatshirt and followed him down a muddy trail along a line of tall fir trees to the old red barn at the bottom corner of the pasture.  The air was clean from recent, heavy rain, and the scent of hay drifted from the stable like heavenly perfume.

“Here you go,” my brother said and filled my cupped hands with apples freshly quartered from a stash in a nearby plastic bucket. “You know how to feed a horse, don’t you?”  I nodded.  Tank, a four-hooved giant with kind eyes and a gentle soul, poked his head out of his stall.  Slice by slice, he carefully nibbled the sweet fruit from my open palm.  When the treats were gone, I caressed Tank’s rust and white muzzle and stroked his powerful shoulders.  I kissed the air, he leaned in close for a soft smooch on his nose, and my soul surrendered to the serenity enveloping a green, wet hillside on a misty Washington morning.  In that precious moment, the catch phrase Mom and I had assigned to annoyances took on a sweet, new meaning.

To my brother, if you’re reading this, you were my knight in shining armor on an October day that will forever be a cherished memory. With all my heart, I love you …

… and the horse you rode in on.

Tank - 1

(Photos of horses, pastures, barns and all that is serene -- courtesy of my sister-in-law, Lori. Big smiles courtesy of enduring love.)

(Photos of horses, pastures, barns and all that is serene — courtesy of my sister-in-law, Lori. Big smiles courtesy of enduring love.)

 

Christmas 2012

It’s All About Me, Al Franken

Remember the bushy-haired, bespectacled comedian from Saturday Night Live who was certain the world revolved around him? He sat at the sardonic news desk; ever interested in how current events would affect him (dramatic pause), Al Franken.  He declared the 1980s the Al Franken Decade and drolly imparted tips on what viewers could do for him.

Being a care recipient is a little … no a lot … like being Al Franken. Your needs come before anyone else in the family.  Your routine dictates everyone’s schedule.  Your crises, medical or otherwise, each become a crisis for the entire household.  As appealing as it may sound to be the focus of attention, I’m fairly certain most care recipients don’t revel in driving the “Frankenbus.”  The route is fraught with tricky twists and turns that could tip that big, unwieldy thing on its side at any time.  There are no seatbelts, no power steering and, worst of all, no power brakes to bring the crazy ride to a screeching halt.

On dozens of occasions during the years my mother drove that bus, she voiced the concern that she was a burden. One day she would worry that she was tiring me out and ruining my health.  Another day she fretted about keeping me from participating in activities with friends and family outside the four walls of our home.  She apologized repeatedly because we couldn’t go out to eat without sitting in the restaurant parking lot for 15 minutes while she carefully tested her blood sugar and injected insulin to counteract the meal she was about to order.  She was troubled that I was whittling away at my sick leave to take her to medical appointments and missing work to tend to her when she was ailing.  As many times as she verbalized her worries, I’m sure she silently turned the same thoughts over in her head hundreds more.

It's All About Me

Farewell Christmas Card 2013

Our modus operandi was generally to find humor in otherwise dismal situations, so eventually her concerns turned into one of the coded messages I’ve often referenced in these columns. If one of us was fussing about something and began to lose sight of the big picture, the other would interrupt and say,

“It’s all about me, Al Franken.”

 It was always good for a chuckle and a quick reality check. Once in a while, we would add Al’s simple reasoning to this narcissistic phrase.  “I’m good enough, I’m smart enough, and dog-gone it, people like me.”

Mom commemorated this coded message in the Christmas card my family was entrusted to deliver after she passed away last year. She died just a couple of weeks before the holiday, so there was little decorating or celebrating in our household.  The best gift I received was that card, the first in a secret series of posthumous missives.  Some I’ve already shared with you; others will make appearances as this continuing saga unfolds.

Mom and Me 2003

Vacation – 2003

“It’s all about me, Al Franken,” was not a signal reserved exclusively for Mom’s low moments. She was known in our family as “the only one,” but she was not the only one to periodically feel trapped by our circumstances.  I was never tired of her; just tired and, as the years passed, it began to show.  As Sarah Ban Breathnach wrote in her 1995 daybook, “Simple Abundance,” it is not the temporary pressure of work (or caregiving) that causes burnout.  That, she says, “comes from living unbalanced for years; when what was supposed to be a temporary situation becomes a lifestyle.”

It wasn’t until the last few years of Mom’s life that the feeling of being constantly tired erupted into full-blown caregiver burnout; the kind that Ms. Ban Breathnach calls the “soul snuffer.” Thankfully, I remained fairly skillful at exposing only surface frustrations in Mom’s presence and censoring my deepest feelings of anguish.  As far as I know, she was unaware that occasionally the weight of our arrangement overpowered me, and I would pour my heart out to anyone who would listen in person, on the telephone or in an email.

When I worried, aloud or silently, it was about many of the same things Mom did. The culture at my workplace was genuinely “family first,” but I still felt anxious about my dwindling sick leave and postponed projects.  Sometimes I imagined what it would be like to go on an outing and not have to heft a wheelchair in and out of the trunk and patiently help Mom slowly transfer back and forth.  I wondered how long God expected me to go on, especially since I was approaching my 60s and couldn’t help noticing that the time to pursue my own lingering dreams was slipping away.  Worse yet, I watched my two grandsons’ childhood racing past, and I couldn’t be present for milestones like holiday pageants or Cub Scout ceremonies.

Every time I lapsed into self-pity about our circumstances, I would inevitably feel guilty for my selfishness. My paternal grandmother’s admonishment, “Don’t be ugly,” would drift through my head and I would, indeed, feel ugly all the way through.  My sister, my daughter and my closest friends would reassure me that it was natural to feel frustrated when holding down a full-time job, caring for someone who was completely dependent on others, and trying to capture a moment now and then with the rest of my family.  At the time, their kind words didn’t make me feel any less ugly, but as with so many things in life, the image in the rearview mirror is crystal clear.  Just looking at the photos posted with this column — from 2003, 2008 and 2012 — I can see the physical changes in both Mom and me, and I can truly understand the multiplying pressures of our years-long journey.

New House - 2008

New House – 2008

Indeed, caregiving and care receiving is a journey … and it’s not for the fainthearted. It is the most advanced course of study anyone will ever take on earth, regardless of whether you are the one providing care or the one receiving it.  The highest level of trust, commitment, patience, compassion, love and forgiveness are prerequisites for both parties.  How else could one get through the ugly moments and gladly return to the arduous path?

Somewhere in Mom’s last year of life, I realized that our time together was growing short. My periodic pity parties came to a halt.  I knew what I had always known — that the only way I was ever going to be released from my caregiving obligations was to lose Mom.  The finality of that solution was no longer an abstract idea in some distant, foggy future.  Suddenly I felt like Diana Prince spinning into Wonder Woman or Popeye consuming a can of fortifying spinach in one gulp.  I heard myself saying repeatedly, “I would take care of Mom forever if she would just stay.”  And I meant it.  The price of freedom was far too high.

In the end, there was no way to pause the journey or avoid the divergence of our paths. Mom was headed to an ethereal destination, and my name was not on the guest list.  Instead, I was advancing toward a new beginning here on mortal ground.  Our separation was inevitable and heart-wrenching.

So many months later, I am no longer constantly tired, my accrued sick leave is growing, and I have the freedom to go just about anywhere I please, anytime I please. Yes, it’s nice, but I would give it all up if I could have Mom back here with me.  As I write this, I can hear her whispering the double-edged truth … that today and every day … whether I like it or not, it is now …

“… all about me, Al Franken.”

Al Franken left Saturday Night Live and went on to become a U.S. Senator from Minnesota. I probably will not pursue politics (the thought makes me shudder) but I am confident that I can do anything I want.  I can become the person I was always meant to be because, just like Al Franken, I am “good enough, I’m smart enough, and dog-gone it, people like me.”  More than that, I’ve got my invincible gold bracelets, my can of body-building spinach and Mom’s enduring love in my heart.  Nothing is more powerful than that.